My health under debate: Debate on the loss of autonomy in Franche-Comté

Date
1 June 2015 - 31 December 2015
Customer
Franche-Comté Regional Conference on Health and Autonomy (the CRSA)
Intervention
Organizing and facilitating workshops, synthesizing the work, training agents
In 2016, nearly 350 local residents and health workers in Franche-Comté took part in a public debate on the theme, “Living at home with a disability, chronic illness or reduced autonomy”. The debate was split into three phases: meetings where people shared their own experiences, participatory workshops at département level and a regional summary forum. These three phases drew on the participants’ experiences and produced some practical proposals intended to influence regional health policies in Franche-Comté over the coming years.

CONTEXT AND GOALS

The CRSA decided to explore the issue of home care for people with a chronic illness or with reduced autonomy. To establish a diagnosis and define solutions for the various situations encountered, a debate was held bringing together people who live in these situations, family caregivers, and health and social workers who provide home care or work in related services.

PROCEDURE

The approach adopted to tackle these complex issues was gradual, both in terms of the area covered and discussion content. Meetings were held in seven rural and peri-urban municipalities to identify the issues faced by people living in this kind of situation. These grassroots meetings were led by agents from the Regional Health Agency (the ARS) trained by Missions Publiques to collect information and run group discussions.
Workshops were then run at département level, bringing together 40 to 100 people to mark out clear avenues for action in response to the initial diagnosis. The third phase was a regional workshop where the work was presented and built upon in the presence of the various participants.
There was then a final seminar for ARS agents and key players, who worked together to analyze the results of the regional debate and to define procedures for implementing the resulting proposals.

“The points discussed are essential to the well-being of the people concerned. This event brings has brought some practical responses.”
–A participant

OUTCOMES

The CRSA’s initiative made it possible to work closely at the grassroots level, taking into account local variations and giving a voice to the people who directly experience situations of dependency and home care, their caregivers, health professionals and stakeholders, in a productive and meaningful dialogue.
It has also helped raise awareness among ARS agents and then trained them in citizen participation and leading participatory meetings, subsequently enabling a multitude of co-construction initiatives across the area.

OUR ADDED VALUE

The workshops held at the various levels helped foster a dialogue thanks to input from several groups: people living in a home care situation (dependent elderly people, people with a physical, mental or psychic disability, or with a chronic disease), their loved ones and carers, a broad panel of professionals involved in home care and various stakeholders in the health and social sectors who interact with all these people. It is a highly inclusive, bottom-up approach designed according to people’s needs, doing away with the conventional ‘silo’ organization and operational processes.

KEY FIGURES

0
participants met to share experiences
0
participants in the participatory workshops
0
attendees at the summary forum
0
measures put forward

DELIVERABLES

Facilitator training guide, mobilization guide, reports and final summary.

“I’m really happy with this evening, the discussion, the ideas. I hope that my contribution will help influence our elected officials on all issues concerning disability.
–A participant
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